Drunk on shadows
Drinking a glass of wine and think through POSITION. The letter today was a shock. For nearly two years, it has been quiet, little-Prince bus was fresh - it was something wrong with all the other tests and hudbiopsin; all Rongen and all ultrasound that was done showed nothing - no accumulations of waste products. Eye examination showed no wonder. Bus is admittedly over-sighted, as opposed to short-sighted that is very common. (Moreover, we also investigated whether he would be albino, the word is some ugly - so you used the "blonde fundus" - but it looked good out.)
In all cases. Many Lysosomal diseases are insidious, ruining children's bodies and many die within a few years. Others are living longer but are being affected mentally (back in progress, fölorar their abilities) as well as physically, but live longer. Yet another group can live fairly normal, but with the physical interactions, or rather a bit long. (Group of Lysosomal Diseases holds around 40's diseases which must be an increase, for four years ago, talked only about 30 or so.) If it is sinister, grave, so developed rapidly. I understand. But the bus is completely normal. No, I do not know how it looks in his heart, liver, spleen and forth. It looked 4 years ago (and cardiologen them was made my day when he said that Bus heart was "perfect"), live well. Then as the good. But mentally, he is his age. That was my biggest fear before, not that I would not love him as much, but for him to get the same chance as any other ("healthy"). And he is admittedly short, but growing at a rate of knots with the super syringe, but his skeleton is not deformed at ; any way. He may be weak, but maybe it's because mum is weak (at heart) and carry him a bit too much ... Maybe.
My conclusion is that my Little Prince-Bus has one of the most serious forms. I hope.
0 comments:
Post a Comment